Yesterday we tackled the task of removing Mom's personal possessions from her room. I did not realize how hard it would be. Luckily my son, Knoll, and my sister, Holly, were here to help with the work. The day before, I had a good day. Good energy, able to set myself a modest goal and work throughout the day to get it done. Yesterday my energy was very low. I just felt tired, drained, out of gas. Every question took a great effort to answer. Every decision felt heavy and hard. Knoll started by sorting the drawers from Mom's desk. Every drawer had an assortment of different things in it, they were all a mix. Knoll was able to set up a collection of containers and figure out categories for what should go where. The last drawer on the lower right was physically heavy to open. This drawer held all Mom's hand weights. She loved to get her exercise lifting these weights while she sat in her chair or lay on her bed. She had extraordinary arm strength and it came in handy as she...
It is hard to explain to those who have not experienced it. It doesn't need to be explained to those who have experienced it. It is high summer. Those who are unencumbered by caring for someone who cannot fend for themselves are out camping, swimming, surfing, sailing. Enjoying nature, companionship and camaraderie. Experiencing adventures that will form memories that will last a lifetime. Here we are caring for our frail elder. She is in good spirits, but her body is failing. We have been here before over the years. For every health crisis we have watched and waited, nursed, made phone calls, discussed amongst ourselves what to do. And each time, to date, our frail elder has recovered. Each time, she has recovered enough to keep going. Each time she has regained some strength, some mobility, some degree of freedom from pain. Each time, she has also lost some strength, some mobility, some freedom from pain. Each time, she has lost some capacity and capability to fend for herself....
These video clips are demonstrations of the concept for arts-based narrative inquiry as a documentary process capturing contemporaneous notes depicting the lived experience of family caregiving. Mom was up early this morning - check timecode moment 3:15 Preparing for Palliative Care Nurse visit - check timecode 220 Consequences - link to John in Halifax (caregiving wife w/ dementia) - check timecode 450
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